Patient Reported Outcome Measures (PROMs)

Patient Reported Outcome Measures (PROMs) are standardized questionnaires completed by patients to assess their health status, functional status, and quality of life. PROMs can give important information about how well healthcare interventions work and help make care more patient-centered.

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Maximizing Patient Engagement with Third-Party Partnerships: A 1-2-3 Model Approach

May 1, 2023

"Patient-reported outcome measures in routine clinical care: A suitable case for treatment?"

This research was conducted by a team of researchers and published in the Journal of Patient-Reported Outcomes. The study explored the use of PROMs in routine clinical care and the potential benefits and challenges associated with their implementation. The research showed that while PROMs have the potential to improve patient care, there are significant challenges that need to be addressed to ensure their effective use in routine clinical practice.

"Development and validation of Gaucher disease type 1 (GD1)-specific patient-reported outcome measures (PROMs) for clinical monitoring and for clinical trials"

This research was conducted by a team of researchers and published in the Orphanet Journal of Rare Diseases. The study focused on the development and validation of a specific PROM for Gaucher disease type 1 (GD1), a rare disease. The research showed that the developed PROM is a significant step forward in measuring the impact of GD and its treatment, and further validation in different populations is needed to confirm its appropriateness.

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